Abstract
Objective: To evaluate the quality of life in children diagnosed with JIA using juvenile arthritis multidimensional assessment report (JAMAR)
Methods: The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) includes 15 parent or patient-centered measures or items that assess well-being, pain, functional status, health-related quality of life, morning stiffness, disease activity, disease status and course, joint disease, extra - articular symptoms, side effects of medications, therapeutic compliance, and satisfaction with illness outcome. The questionnaire was applied to 44 children who attended the pediatric rheumatology clinic in Alexandria University Children’s hospital, Egypt. The questionnaire was repeated to all patients after 6 months
Results: Results of this study revealed that the JAMAR questionnaire was valid, reliable and sensitive to change of the disease activity The JAMAR provided thorough information for the study patients about recent medical history and current health status.
Conclusion: Integrating patient reported outcome measures into standard clinical practice is feasible and applicable. Development of the JAMAR introduces a new approach in pediatric rheumatology practice. This new questionnaire may help enhance the quality of care of children with JIA.
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Corresponding Author
Ismail M.A
Department of Pediatrics, Alexandria University, Egypt
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
DOI: https://dx.doi.org/10.18535/jmscr/v6i8.118
