Abstract
Alappuzha district in Kerala is an endemic area for Lymphatic Filariasis. Since 2006 self help groups for filarial lymphedema patients were initiated with the joint efforts from the Dept of Community Medicine, NGOs and the National Filariasis Control Unit, Alappuzha. They are working for the well being and improvement of filarial lymphedema patients. A cross sectional study was conducted to estimate the quality of life of filarial lymphoedema patients in a coastal area of Alappuzha district. Various clinics were organized at the subcentre level in Mararikulam South Panchayat which is a rural costal area in Alappuzha. Data was collected using LYMQOL questionnaire which contains four domains– Function, Appearance, Symptoms, Mood. In each domain a score of 80 % or more was considered good. The overall score was divided into tertiles, those in the lower tertile was presumed to have good quality of life and middle and upper tertiles was considered as average and poor quality of life. A total of 56 patients were obtained. Of whom 57.1%were females. In the functional domain only 12.5% had good quality of life whereas other domains such as appearance, symptoms, mood ;92.9% ,75% ,51.8% had good quality of life respectively. Overall 8.9% had good quality of life, 82.1%had average quality of life and 8.9 % had poor quality of life.
Keywords: Quality of life , filarial lymph edema and self help groups.
References
1. Wynd S, Melrose DW , Durrheim N D, Carron J , Gyapong M. Understanding the community impact of lymphatic filariasis: a review of the sociocultural literature. Bulletin of the World Health Organization. May 2017: 1 9 .Available at http://www.who.int/bulletin/volumes/85/6/06031047/en/. Accessed on 15.5.2017.
2. Bhatia M , Dwivedi V, Bhargo L, Mahajan CP. A Quantitative and Qualitative Evaluation of Mass Drug Administration (MDA) program in three districts of Madhya Pradesh (India). Asian Pac. J. Health Sci., 2014; 1(4S): 63-70.
3. Filariasis Control in India & Its Elimination. Chapter 1.Available at http://nvbdcp.gov.in/doc/guidelines-filariasis-elimination-india.pdf.Accessed on 4.3.2016.
4. Chimori K, King JD, Engels D, Yajima A, Mikhailov A, et al. Global Programme to Eliminate Lymphatic Filariasis: The Processes Underlying Programme Success. PLoS Negl Trop Dis. 2014; 8(12):1-9.
5. Vaughan K,Sue C, Jane L,Debbie V, Katie R, Rachel H. A quality of life measure for limb lymphoedema (LYMQOL). Journal of Lymphoedema.2010; 5(1): 26–37.
6. Park K .Park’s textbook of Preventive and Social Medicine.23rd edition. Jabalpur: M/S Banarisdas Publishers;2015.
7. Upadhayula SM, Mutheneni SR, Kumara-swamy S, Kadiri M R. Assessment of microfilaria prevalence in Karimnagar and Chittoor Districts of Andhra Pradesh, India. Asian Pacific Journal of Tropical Medicine. 2010;647-650.
8. Suma TK. Indian Scenario of Elimination of Lymphatic Filariasis.Chapter 3.Pdf .Available at www.apiindia.org/medicine_update_2013/chap03.pdf.Accessed on 5.4.2016.
9. Wijesinghe RS, Wickremasinghe AR, Ekanayake S , MSA Perera MSA. Physical disability and psychosocial impact due to chronic filarial lymphoedema in Sri Lanka. Filaria Journal .2007; 6:4.
10. Coreil, J., Mayard, G., & Addiss, D. (2003). Support groups for women with lymphatic filariasis in Haiti. TDR Social, Economic, and Behavioral Research Report Series No.2. Geneva: World Health Organization.
Corresponding Author
Dr A Krishnaveni
1Post Graduate, Dept of Community Medicine
Govt. T.D Medical College, Alappuzha
Email: This email address is being protected from spambots. You need JavaScript enabled to view it. 8714545567