Title: Caregiver burden of elderly psychiatric and medically ill patients: A comparative study

Authors: Vishal Sinha, Zeeshan Anwar, Sayantanava Mitra, Narveer Yadav

 DOI: https://dx.doi.org/10.18535/jmscr/v7i2.145

Abstract

Caregivers of elderly patients suffering from chronic illnesses are at increased risk of health problems themselves. In India, caregivers of elderly patients are usually close family members. The aim of the study was to assess and compare the burden on caregivers of elderly medical and psychiatric patients. A total of 60 elderly patients and their caregivers (30 patients and 30 caregivers in each group) were included in the study. Burden on the caregivers of elderly psychiatric patients was significantly more than that of caregivers of elderly medical patients and worsens with the deterioration of general health and quality of life of elderly patients and with increasing age and duration of care giving.  Proper intervention to reduce the burden among the caregivers of elderly patients, particularly psychiatric patients, should be routinely incorporated for the betterment of both the patients and caregivers.

Keywords: caregiver burden, elderly, psychiatric.

References

  1. World Health Organization. 10 facts on ageing and the life course, 2011. Available from: http://www.who.int/ features/ factfiles/ageing/en/
  2. Census of India (2001) Population Projection for India and States 2001-2026 (revised December 2006), Report of the technical group on population projections constituted by the National Commission on Population, May2006.
  3. http://ghdx.healthmetricsandevaluation.org/global-burden-disease-study-2010-gbd-2010-data-downloads
  4. Ampalam P,Gunturu S, Padma V. A comparative study of caregiver burden in psychiatric illness and chronic medical illness. Indian J Psychiatry:2012 Jul-Sep; 54:3;239-24.
  5. Zarit SH, Reever KE, Bach S. Relatives of the impaired elderly: Correlates of feeling of burden. The Gerontologist 1980; 20: 649-55.
  6. Zarit SH, Todd PA, Zarit JM. Subjective burden of husbands and wives as caregivers: A longitudinal study. The Gerontologist 1986; 26: 260-6.
  7. Krupnik Y, Pilling S, Killaspy H, Dalton J. A study of family contact with clients and staff of community mental health teams.Psychiatric Bull.2005;29:174–6.
  8. Aneshensel C, Pearlin L, Mullan J, Zarit S, Whitlatch C. Profiles in care giving: The unexpected career. San Diego, CA, US, Academic Press :1995.
  9. Gilleard CJ, Gilleard K, Gledhill K, Whittick J. Caring for the mentally infirm at home: A survey of the supporters. Journal of Epidemiology and Community Health1984;38: 319–325.
  10. Teri L, Truax P, LogsdonR, Uomoto J, Zarit S, Vitaliano P. Assessment of behavioral problems in dementia: The revised Memory and Behavior Problems Checklist, in: Psychology and Aging. 1992;7: 622–631.
  11. Serrano-Aguilar PG, Lopez-Bastida J, Yanes-Lopez V. Impact on health-related quality of life and perceived burden ofinformal caregivers of individuals with Alzheimer’s disease. Neuroepidemiology 2006:27(3);136–142.
  12. Papastavrou E, Kalokerinou A, Papacostas SS, Tsangari H, Sourtzi P. Caring for a relative with dementia: family caregiver burden. Journal of Advanced Nursing.2007:58(5);446–457.
  13. Kim H, Chang M, Rose K, Kim S. Predictors of caregiver burdenin caregivers of individuals with dementia. Journal of Advanced Nursing.2012:68(4);846–855.
  14. Daniel WL. Effect of Financial Costs on Care giving Burden of Family Caregivers of Older Adults, SAGE Open .2012: October-December;1– 14
  15. Novak M, Guest C. Application of a multidimensional caregiver burden invent-tory.Gerontologist.1989;29:798–803.
  16. Baumgarten M, Hanley JA, Infante-Rivard C, Battista RN, Becker R, Gauthier S. Health of family members caring for elderly persons with dementia.Ann Intern Med. 1994;120:126–32.
  17. Dunkin JJ, Anderson-Hanley C. Dementia caregiver burden: a review of the literature and guidelines for assessment and intervention.Neurology.1998;51(suppl 1): S53–S60.
  18. Drinka TJ, Smith JC, Drinka PJ.Correlates of depression and burden for informal caregivers of patients in a geriatrics referral clinic.J Am GeriatrSoc. 1987;35:522–5.
  19. WHOQOL Group. Development of the World Health Organization WHOQOL-BREF quality of life assessment. Psychological Medicine 1998; 28:551-558.
  20. Goldberg DP. Manual of the General Health Questionnaire. Windsor, England: NFER Publishing, 1978
  21. Zarit S.H., Reever K.E., Bach-Peterson J.  (1980). Relatives of the impaired elderly: correlated of feelings of burden. Gerontologist,20, 649-655.
  22. Chadda RK. Caring for the family caregivers of persons with mental illness.Indian J Psychiatry2014;56 :221-7.
  23. Karlıkaya G, Yüksel G, Varlıbas F, Tireli H. Caregiver burden indementia: a study in the Turkish population. The Internet J. Neurol. 2005:4 (2).
  24. Christofoletti G, Oliani MM, Bucken-Gobbi LT, Gobbi S, Beinotti F,Stella F. Physical activity attenuates neuropsychiatric disturbances and caregiver burden in patients with dementia. Clinics.2011;66(4):613-618.
  25. Prasanth A, Padma V, Raju NN, Narasimha Reddy M. A comparative study of caregiver burden in psychiatric illness & chronic medical illness.AP J Psychol Med. 2010; Aug-Dec 11:16-
  26. Gupta A, Sharma R. Burden and coping of caregivers of physical and mental illness. Delhi journal of psychiatry.Vol 16 no.2
  27. Karlikaya G,Yukse G, Varlibas F, Tireli H. Caregiver burden in dementia: A study in the Turkish population. The Internet J Neurology.2005;4:2.
  28. Chou KR, Chu H, Tseng CL, Lu RB. The measurement of caregiver burden.J Med Sci. 2003;23:73–82.
  29. Ganguly KK, CHadda RK, Singh TB. Caregiver Burden and Coping in Schizophrenia and Bipolar Disorder.The American Journal of Psychiatry. 2010 Apr;161(5):850–856.
  30. Gupta R,Pillai V K. Elder Caregiving in South-Asian Families in the United States and India. Social Work & Society.2012:10;2.
  31. Grad J, Sainsbury P. The effect that patientshave on their family in community care andcontrol psychiatric services: A two years followup. Br J Psychiatry 1968; 39: 265-278.
  32. Hoeinig J, Hamilton MW. The schizophrenic patient in the community and his effect on the household. International J Soc Psychiatry, 1966;12: 165-176.
  33. Jones SL, Roth D, Jones PK. Effect of demographic and behavioral variables on burden ofcaregivers of chronic mentally ill persons. Psychiatr Serv 1995; 46: 141-145.

Corresponding Author

Vishal Sinha

Department of Psychiatry, SN Medical College, Agra, UP, India